SBAC Spina Bifida Association
of Colorado

Annual Fundraiser & Community Awareness

2007
(and 1-Mile Family Fun Walk)
[Directions]

On Sunday, May 13th 2007 at Washington Park (Mississippi Parking Lot) in Denver, the Spina Bifida Association of Colorado held its Annual 5K Walk, Run, Roll (and 1-Mile Family Fun Walk) fundraiser and community awareness event.

This is our biggest fund raiser of the year!
  Come have some fun and help us meet our goal of $25,000.
Invite your friends too!
     

Online Registration
[currently closed]

or
Mail-In Registration
(2-sided Brochure)
[Word version]   [PDF version]

Participant Pledge Sheet
[Word version]   [PDF version]
Please Sponsor Me!
(Easy cut & paste sample—email to everyone you know)   [Word version]   [PDF version]

More Opportunities To Show Your Support!



Activities Schedule:
9:00-10:00 a.m.
9:30 a.m.
9:35 a.m.
10:15 a.m.
11:00-Noon
Registration
5K Run
5K Walk
1 Mile Family Fun Walk
Awards & Fun
   (5K = 3.1 miles-approximately)



 Meet Riley!
 A spirited, silly and determined little girl

As so many new parents can attest, the happiest, most fulfilling day they will ever come to know is the day on which their first child is born.

Thornton couple Tami and Justin Tuttle welcomed their first child to the world on February 9th, 2005. Immediately, they fell in love with the beautiful, blue-eyed, brown-haired girl whom they decided to name Riley.

The meaning of the name Riley is “courageous and brave”; traits that Justin and Tami felt their daughter would possess and would be so important as she faced the challenges of spina bifida.

The first challenge was the surgery to close her lower lumbar/upper sacral lesion just a few hours after she made her way into the world. Justin and Tami were so thankful for the support from their family and friends and for the amazing doctors and staff at the hospital. From then on, Justin and Tami have enjoyed getting used to parenthood.

Riley was an easy-going, happy infant. Early intervention programs through the Colorado Department of Education’s Early Childhood Connections have proven to be significant to Riley’s excellent progress. A physical therapist has visited Riley weekly at home. In addition, from about 6 months of age, Riley has visited The Children’s Hospital’s Northwest Specialty Care Center twice weekly where she receives physical and occupational therapy services. Riley enjoys her visits to the gym so much that she now asks to “go play with Helene and Susan”.

Over the last two years, Riley has faced many challenges including VP shunt placement, extraction of congenital cataracts, shunt revision, Chiari II decompression, and most recently a syrinx-pleural shunt. She never fails to amaze all those around her with her resilience and cheerful disposition. Despite all of the medical intervention, Riley continues to grow and achieve success in reaching her goals.

Now, as an energetic, inquisitive 2 year old, Riley continues to enjoy swimming, reading, music and other fun activities like sledding, going to the park, riding in her 4-wheeler, playing with the neighbor kids, visiting the library, and other outings like camping, boating, and going to the zoo. She can crawl and is learning to use a walker and is excelling in her language development.

Recently, Justin and Tami and their families have come to realize the benefits of networking with others that share their experiences. They have taken advantage of recent CSBA sponsored educational seminars and Tami has enjoyed getting to know some of the other mothers through the CSBA luncheons and playgroups.

Also, in an effort to support CSBA, Tami and her sister Lindsey ran a ˝ marathon in January raising over $5,000 by soliciting donations from family and friends. Lindsey was amazed at the support they received stating, “People often want to help and just don’t know how. We were surprised at the generosity of those that have never even met Riley having only seen pictures and heard of her story.”



Justin and Tami, along with their extended families, are excited to participate in the
upcoming 5K Walk, Run, Roll on Mother’s Day at Washington Park.


They look forward to the continued love and happiness that Riley brings to their lives.
She is such a spirited, silly and determined little girl.

Each and every day brings new memories that they will cherish forever.




More Opportunities To Show Your Support

The Spina Bifida Association of Colorado would like for you to participate with us in our fun event and meet many of the members of our organization that will be helped by your generous donation.
Sign up now in one of the following ways for this worthwhile cause and fun-filled event.
Can't be there in person?  
Make a donation!

Become A Sponsor
    For a donation of $500 or more, your company or team logo will be included on our 5K T-shirts and in the event advertising. We will also make regular announcements throughout the event mentioning your name. Additionally, your logo will be included on the Donors & Sponsors page of our website and printed in our quarterly newsletters through April, 2008.


    Important Note:
    To be included in the brochure and on the t-shirts, payment & logo is due by April 1st, 2007


Promote Your Business!
    For a $100 minimum donation, promote your organization or company. We'll provide a table and two chairs.
    See the registration form below for details:


Volunteer
    Volunteers are always needed and appreciated!


Make A Donation
    We are also currently seeking donations in the form of cash, items for door prizes, and other contributions of service, supplies, equipment or other tangible resource. These may be checks, gift certificates, actual products, etc.

      To Make A Donation:   Contact Marge  or  Click Here for a printable donation form.

            Please make checks payable to:
            Colorado Spina Bifida Association
            Mail to:
            P.O. Box 22994
            Denver, CO 80222



How Your Donations Help

There are over 300 children and adults living with this birth defect in Colorado.

Your contribution will help support our age-appropriate group activities, member assistance programs, educational programs, and our public information outreach.

For more information on how your donations help, click here.

For answers to frequently asked questions about Spina Bifida, click here.



Thank You For Your Support!!
See you next year!






counter created 3/6/2007





The information on this website should not be interpreted as medical or professional advice
Disclaimer
© Spina Bifida Association of Colorado